Unique - Understanding Chromosome Disorders

Each year across the UK hundreds of babies are born with a rare chromosome disorder, meaning they have extra, missing or rearranged genetic material. Many are born sick and disabled, often unable to walk or talk and suffering life-limiting and even life-threatening conditions. Such special children can have a very demanding lifelong emotional and physical impact on their families. Rare chromosome disorders can happen to anyone yet support, information and advice for families are patchy and difficult to access. Unique is the UK's only charity for families affected by rare chromosome disorders who have absolutely no-one else to turn to. We pick up the pieces and make a huge difference to these children and their families. Our services include a Listening Ear telephone and email helpline, a family support and matching service and information guides to specific rare chromosome disorders which are free of charge and not available anywhere else. For more information about our work or how you can support us, please visit www.rarechromo.org